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michellelilly52 Michelle Lilly @michellelilly52 mentions
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<span class="emoji emoji1f49c"></span>Thank You Everyone for supporting The Epilepsy Foundation of Greater Chicago on #givingtuesday ...
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Thank You Everyone for supporting The Epilepsy Foundation of Greater Chicago on #givingtuesday We are VERY appreciative!!! 💜Thank You Everyone for supporting The Epilepsy Foundation of Greater Chicago on #givingtuesday We are VERY appreciative!!! ❤️❤️❤️
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Even $1.00 on Giving Tuesday DOUBLES EFFORTLESSLY! <span class="emoji emoji1f49c"></span> It is the easiest AND one of the MOST important ...
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Even $1.00 on Giving Tuesday DOUBLES EFFORTLESSLY! It is the easiest AND one of the MOST important things you can do to help Eva and SO MANY others who are forced to live with Epilepsy EVERY SINGLE DAY. It’s a common saying within the Epilepsy Community, “I have Epilepsy but It Doesn’t Have ... Even $1.00 on Giving Tuesday DOUBLES EFFORTLESSLY! 💜
It is the easiest AND one of the MOST important things you can do to help Eva and SO MANY others who are forced to live with Epilepsy EVERY SINGLE DAY. 💜
It’s a common saying within the Epilepsy Community, “I have Epilepsy but It Doesn’t Have Me.”. THAT is definitely a daily goal BUT in many ways, that doesn’t accurately express how - EPILEPSY INFILTRATES LIVES.
Seizures are a daily theme.
Will I have a seizure(s) today?
Where will I be?
How big will it be?
How many seizures did she have?
Do we need the Rescue medication?
What kind?
How long did they last?
Where were you?
What did the people around you do during your seizure?
Did you know that you had a seizure?
Is she breathing? Check to make sure.
Seizures that don’t stop = ER visits/ICU for Status Epilepticus.
Extended EEGs, Depth electrode surgical SEEG’s, Grids, Brain Surgeries, Deep Brain Stimulator device, Neuropsychological exams, titrations, MRI’s/MEGs, PETs, CTs, cross titrations, weaning, new med(s), 5 medications each dosed 3 times daily and STILL there
are daily seizures. Word recall & short term memory struggles. Extreme fatigue. Medication side effects. Acidosis. Seizure kindling leading to status + ICU + IV seizure meds.
This all sounds like A LOT. BUT it is not UNCOMMON for the millions of people who live with Epilepsy EVERY SINGLE DAY.
To say “I Have Epilepsy But It Doesn’t Have Me” might look good on a T-Shirt or a Facebook post -
But that is damn near impossible.
We need MORE! More Community Education! More Awareness! More Treatments that are MORE Effective with less debilitating side effects. More Research! A CURE! Please Go To My Facebook Fundraiser & Multiply your Donation On #givingtuesday #epilepsychicago #epilepsywarrior #cureepilepsy #epilepsyawareness #epilepsyawarenessmonth
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<span class="emoji emoji1f49c"></span><span class="emoji emoji1f49c"></span><span class="emoji emoji1f49c"></span>November is Epilepsy Awareness month<span class="emoji emoji1f49c"></span><span class="emoji emoji1f49c"></span><span class="emoji emoji1f49c"></span>. A few FACTS: 1. No two epilepsies are alike. 2. Even ...
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November is Epilepsy Awareness month. A few FACTS: 1. No two epilepsies are alike. 2. Even when one isn’t seizing they are affected, physically & psychologically by Epilepsy 3. Your advice is well-meaning but what brings one person seizure freedom might not be an appropriate ... 💜💜💜November is Epilepsy Awareness month💜💜💜. A few FACTS:
1. No two epilepsies are alike.
2. Even when one isn’t seizing they are affected, physically & psychologically by Epilepsy
3. Your advice is well-meaning but what brings one person seizure freedom might not be an appropriate option for another person.
4. The anti-seizure medications all come with side effects.
5. Seizures are exhausting.
I L💜VE an Epilepsy Warrior💜
#EpilepsyAwarenessMonth
#CureEpilepsy
#epilepsywarrior #epilepsy #curestigma #collegestudentswithdisabilities
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This guy<span class="emoji emoji2764"></span>️. #researcherextraordinaire #futuremd #kindsoul #myson @alexjboyle #billnyethescienceguy ...
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This guy️. #researcherextraordinaire #futuremd #kindsoul #myson @alexjboyle #billnyethescienceguy ️You This guy❤️. #researcherextraordinaire #futuremd #kindsoul #myson @alexjboyle #billnyethescienceguy ❤️You
<span class="emoji emoji1f49c"></span>Love<span class="emoji emoji1f49c"></span>. @boylekelsey #heartofgold #sensitiveandstrong #mentalhealthprofessionals #rogersmemorialhospital ...
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Love. @boylekelsey #heartofgold #sensitiveandstrong #mentalhealthprofessionals #rogersmemorialhospital The work you do, day in, day out and the impact you have on the lives of so many children ️. You’re beautiful! 💜Love💜. @boylekelsey #heartofgold #sensitiveandstrong #mentalhealthprofessionals #rogersmemorialhospital The work you do, day in, day out and the impact you have on the lives of so many children ❤️. You’re beautiful!
 #sudep #epilepsyawareness #epilepsy
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#sudep #epilepsyawareness #epilepsy #sudep #epilepsyawareness #epilepsy
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Refractory Epilepsy. Intractable Epilepsy. Treatment Resistant Epilepsy. These diagnoses ...
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Refractory Epilepsy. Intractable Epilepsy. Treatment Resistant Epilepsy. These diagnoses all mean the same thing. Despite multiple medications, brain surgeries, CBD, implanted devices - some people with epilepsy still suffer from seizures and that increases their risk of SUDEP. ... Refractory Epilepsy. Intractable Epilepsy. Treatment Resistant Epilepsy. These diagnoses all mean the same thing. Despite multiple medications, brain surgeries, CBD, implanted devices - some people with epilepsy still suffer from seizures and that increases their risk of SUDEP.
#epilepsywarrior #epilepsyawareness #cureepilepsy #epilepsy #sudep 😢💜
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<span class="emoji emoji1f382"></span><span class="emoji emoji1f382"></span><span class="emoji emoji2764"></span>️Happy Birthday to this beautiful young woman @evaviolet . She is a treasure & everything about ...
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️Happy Birthday to this beautiful young woman @evaviolet . She is a treasure & everything about her just sparkles! I love you Eva Violet🎂🎂❤️Happy Birthday to this beautiful young woman @evaviolet . She is a treasure & everything about her just sparkles! I love you Eva Violet❤️
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 #epilepsy #epilepsyawareness #findacure #cureepilepsy <span class="emoji emoji1f49c"></span>. We are home. Eva is doing alright & ...
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#epilepsy #epilepsyawareness #findacure #cureepilepsy . We are home. Eva is doing alright & resting & recovering. Thank you everyone for your kind words & words of support & concern. It helps. Sitting in the hospital room with Eva, well, reading your words of support helped. . Happy ... #epilepsy #epilepsyawareness #findacure #cureepilepsy 💜. We are home. Eva is doing alright & resting & recovering. Thank you everyone for your kind words & words of support & concern. It helps. Sitting in the hospital room with Eva, well, reading your words of support helped. 💜💜💜. Happy Labor Day💜❤️
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 #epilepsy Life with refractory epilepsy. Always lurking. We never made it through the whole movie ...
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#epilepsy Life with refractory epilepsy. Always lurking. We never made it through the whole movie yesterday...... Epilepsy decided to wield it’s ugly hand with a force stronger than the usual. . #epilepsywarrior @evaviolet #cureepilepsy #epilepsyawareness #epilepsy Life with refractory epilepsy. Always lurking. We never made it through the whole movie yesterday...... Epilepsy decided to wield it’s ugly hand with a force stronger than the usual. 💜💜💜💜. #epilepsywarrior @evaviolet #cureepilepsy #epilepsyawareness
08/11/2006 - #love <span class="emoji emoji2764"></span>️
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08/11/2006 - #love 08/11/2006 - #love ❤️
@stevenwoodwardsculptor #guirlande #worldflags #globallove #tyingtheworldtogether
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@stevenwoodwardsculptor #guirlande #worldflags #globallove #tyingtheworldtogether @stevenwoodwardsculptor #guirlande #worldflags #globallove #tyingtheworldtogether
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